October 6, 2010 in Uncategorized with 8 Comments

This morning Nurse Jennifer came over to the house and showed us how to give Gray his daily shot of Neupogen. This medicine will help keep Gray’s white blood cell count stay in check. The shots cost over $2,500.00 for four weeks worth of dosage! Thank goodness for insurance to help defray at least some of the cost! It was more then wonderful to wake up at home today. Just to be together as a family. The night wasn’t easy, though. Gray won’t sleep in his own  bed and so he ended up sleeping in the rocking recliner with mom. Obviously, that means not too much restful sleep for either of them. In fact, Gray spent the entire night reaching up, in his sleep, and hitting his mama in the face waking her up each time. We’re not sure if he was dreaming or just taking out aggression but either way it was a long  night in the recliner. It has been beyond wonderful, however, to be back in our own space! After one full day at home, we ask for your continued prayer in a few specific areas. One, obviously, is please pray for more rest and pray that Gray will get used to his own bed again and feel safe and comfortable in his own room. We also ask that you pray for wisdom for our family. There are so many decisions to be made and we want to make sure we’re doing the right thing with each one. We  also need confidence to use the tools the doctors and nurses have given us to help care for Grayson at home. We have to give him a shot each day among other things and it’s definitely going to take some getting used to. We want to make our baby better but it’s still difficult to see him through the process. Again, we want to say a HUGE thank you to you all for your continued support, love and prayers. It’s means more  to us then you’ll ever know. It’s humbling to think of the thousands of people remembering Grayson each day. We love you all!

What a perfect way to end the day. So calm. Gray is enjoying the beautiful weather, and enjoying the moment…

“God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging.”  -Psalm 46:1-3